A Resource Guide for Children and Adults
With Developmental Disabilities
Click on Subject to go to the Book Marked Area on this page
| Advocacy | Communication Aids |
| Education | Employment |
| Federal | Health and Medication Information |
| Information & Other Resources | State |
| Support | Travel and Entertainment Resources |
To go to list in alphabetical order click here.
Abuse Reporting Information for Vulnerable Adults DSHS
Families USA: Preserving Medicaid in Tough Times: An Action Kit for State Advocates Families USA has created a Medicaid Action Center, you can access this information at: http://www.familiesusa.org/Medicaid%20Action/index.htm
PACER CENTER - Parent Advocacy Coalition for Educational Rights
Pierce County Parent Coalition
Self-Advocates
Becoming Empowered (SABE) & their most recent and exciting publication:
Sticks
& Stones ~ Personal Stories About Labeling.
Spokane County Parent Coalition
The Arc of the Olympic Peninsula
The Arc - U.S. Legislative & Media Information
The Nation's Disability Rights Network
Washington State Parent Coalitions
VCFS/DiGeorge Family Support Network
Washington Protection & Advocacy Systems (WPAS)
Ability Hub Assistive Technology Solutions
Crestwood Communication Aids, Inc.
Adolescent Health Transition Project’s “Working Together for Successful Transition: Washington State Adolescent Transition Resource Notebook”.
ASK-Advocates for Special Kids (parents helping parents understand special education)
Bullying Report: How are Washington State Schools Doing? This preliminary report, issued by the Washington State PTA and The Safe Schools Coalition, is a result of the passage of HB 1444 in 2002. View these preliminary findings to see how our schools are dealing with issues of harrassement, intimidation and bullying. http://www.safeschoolscoalition.org/bullyreport/index.html
Disability Museum/Library & Education (Teacher Resources Course Packets)
Family & Advocates Partnership for Education (FAPE) Newsline
Family Educator Partnership Project (FEPP)
National Center on Educational Outcomes (NCEO)
National Center on Educational Outcomes (NCEO) Graduation Requirements
National Center on Secondary Education and Transition
National Early Intervention Longitudinal Study (NEILS)
National Institute for Urban School Improvement
National Center on Low-Incidence Disabilities
National Mental Health and Education Center
Office of the Superintendent of Public Instruction (OSPI)
OSERS (DOE) - Department of Education, Office of Special Education and Rehabilitative Services
PACER CENTER - Parent Advocacy Coalition for Educational Rights
Parent to Parent - State Office(P2P)
P.A.V.E. (Parents Are Vital in Education)
Transition from School to Adult Life
Transition to Adult Life: A Shared Responsibility Website
University of Washington/Department of Rehabilitation Medicine
Washington Education Association (WEA)
Washington State Special Education Coalition (WSSEC)
Washington State Special Education Training for All (WSSETA)
National Center on Workforce and Disability/Adult (One Stop Career Center)
Office of Disability Employment Policy (ODEP) at the Department of Labor (grants for employment)
Rehabilitation Enterprises of Washington (REW)
Social Security Online Ticket to Work
Ticket to Work calendar
U.S. Office of Personnel Management (Information on Federal Employment for People with Disabilities)
Washington Initiative for Supported Employment (WISE)
Access America - www.disAbility.gov
Benefits Eligibility Screening Tool (BEST) - learn what social security benefits you may be eligible
Centers for Medicare & Medicaid Services OSERS (DOE) - Department of Education, Office of Special Education and Rehabilitative ServicesDisability Government Information at http://www.disabilityinfo.gov
HCFA - Health Care Financing Administration
HUD - Housing and Urban DevelopmentHHS - Department of Health and Human Services
OSERS (DOE) - Department of Education, Office of Special Education and Rehabilitative Services
Social Security Administration: Benefits for Children with Disabilities
Social Security Administration has a new site, Information for National Organizations and Groups
Social Security Online Disability Programs
United States House of Representatives Home Page
United States Senate Home Page
Welfare Reform and SSI Childhood Disability
Health and Medication Information
Abuse Reporting Information for Vulnerable Adults
Center for Children with Special Health Care
Needs - Children's Hospital and Regional Medical Center; PO
Box 5371/CM-09; Seattle, WA 98105
Phone (206) 527-5709, ext. 1; Fax: (206) 527-5705
website: http://www.cshcn.org
Email: msety@chmc.org
Children's Hospital Library offers a special collection of books
devoted to the topic of autism. For more information call:
206.526.2098
Fax: 206.527.3838
Email: library@chmc.org
Dental Care - Website designed to link persons with a disability who is in need of dental care to dental professionals. www.dental.washington.edu/disability
Emergency Evacuation Procedures Re-evaluated for People with Disabilities
Healthcare Coach - by National Health Law Program
HHS Launches Healthfinder Espanol
Healthy Mothers, Healthy Babies Coalition of Washington State ASK (Answers for Special Kids) 1-800-322-2588
Kids Quest on Disabilities & Health
National Institute of Child Health & Human Development (NICHD)
National Institutes of Mental Health
National Mental Health and Education Center
National Organization for Rare Disorders, Inc.
Project MED" (Medical Education for Consumers) was created with funding from the U.S. Administration on Developmental Disabilities. The goal of project MED is to provide patients with information, in a manner that they can understand, about the medications that they are taking.
QuickLinks is an email resource for health professions. You can subscribe online at http://www.seattlechildrens.org/quicklinks/subscribe or call: Abby Saxon 206.527.5707 ext. 5319
Refugee Health & Immigrant Health
The Technology Assisted Self Care™ Network (TASC) is a group of health care professionals who have chosen to explore and integrate new treatments and technologies into the care of their patients. Worldwide more than 1200 physicians, physical and occupational therapists have completed various levels of training in TASC protocols specifically designed to benefit individuals and families who are managing neurological disorders and injuries.
The Washington Assistive Technology Foundation (WATF)
Washington State Medical Home Leadership Network (MHLN) promotes medical home partnerships
Abuse Reporting Information for Vulnerable Adults
Access Washington Resource Directory is a statewide directory of health and human services for the citizens of Washington State. AWRD is an evolving directory updated frequently. Agencies and organizations listed in the directory are contacted quarterly to determine if changes have occurred in the services they provide. Visit Access Washington AWRD at http://www.awrd.org.
DCCEL- Division of Child Care and Early Learning
DSHS Pilot Program to help clients hire and retain in-home care workers http://www.wa.gov/dshs/mediareleases/2002/pr02008.shtml
Help for Working Families - Find what benefits are available to you
Infant Toddler Early Intervention Program (ITEIP)
Status and Trends Through 1999 for Residential Services for Persons with Developmental Disabilities
Washington State Department of Social and Health Services (DSHS)
Washington State Developmental Disabilities Council (DDC)
Washington State Division of Developmental Disabilities (DDD)
Washington State Division of Vocational Rehabilitation (DVR)
Washington State Human Rights Commission (HRC)
Washington State Legislative Evaluation and Accountability Program Committee
Washington State Legislature District Information Lookup
Exceptional Parent - providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
Family Resource Coalition of Washington - Information about FRCW and Family Support
National Center for Family Support
National Parent Network on Disabilities (NPND)
Northwest Rett Syndrome Foundation (NWRSF) Contact #: 425.888.9816
Parent Support Group Washington is a non-profit support group for parents of children with special needs provided by Bethel School District in Graham.
Sibling Support Project with The Arc US
Sibling Support Project's Online Calendar
Washington State Fathers Network
Access Washington Resource Directory (AWRD) - Statewide resource directory of health and human service providers in Washington.
American Association for Persons with Disabilities - (AAPD)
American Association on Mental Retardation - AAMR
American Association of University Affiliated Programs for Persons with Developmental Disabilities (AAUAP)
The Arc on Future Planning - for families with individuals with disabilities
The Arc of the United States - Publications Desk
Asperger’s Syndrome Information
Association for Children with Down Syndrome, Inc.
Association of University Centers on Disabilities
Autism Fact Sheets (NICHD)
Autism Help Flash Cards - CD-ROM with thousands of images to teach children with Autism.
Autism information in languages other than English
Baby Jogger - Offers adapted jogging strollers for children with special needs
Bart Stevens Special Needs Planning
Batten Disease Support and Research Association
Brain Injury Association of America
Brain Injury Association of Washington
Brookes Publishing - Where you can find guidebooks, texts, curricula, videos, and tools based on the best research in disabilities, education, and child development.
CdLS Society - Cornelia de Lange Syndrome Foundation
CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder
Center for the Study of Autism
Center on Human Development and Disability (UW)
The Cerebral Palsy Critical Elements of Care - (pdf document)
CMP (Captioned Media Program) provides a free-loan media program of over 4,000 open-captioned titles (videos, CD-ROM, and DVD). Deaf and hard of hearing persons, teachers, parents, and others may borrow materials. There are no rental, registration, or postage fees. Several hundred titles are also streamed on the CMP web site.
Counsel of Exceptional Children (CEC)
Developmental Disabilities Lasts a Lifetime (DSHS - The Changing World of Disabilities)
Disability Museum/Library & Education (Teacher Resources Course Packets)
Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet
DND Press - Home of the Disability Resource Library
Early Infant & Childhood Conference
Easter Seal Society of Washington
Epilepsy Support Groups and Organizations
ERIC Clearing House on Disabilities and Gifted Education
Estate Planning (Publication by NICHCY)
Evergreen Spina Bifida Association
Family Resource Coalition of Washington - Information about FRCW and Family Support
Families USA - Information on medicaid and managed care
Family Village - list servs and websites on financial planning
Family Village Project has an internet guide with links to language translation sites.
Family Voices: Family and Friends Speaking on Behalf of Children with Special Health Care Needs
Washington State Fathers Network
FEAT of Washington: Families for Effective Treatment of Autism
Federal Children with Disabilities - Disability Resources Monthly (DRM) Guide to Resources on the Internet
Fetal Alcohol Syndrome Family Resource Institute
Financial Planning for your Special Needs Child
Internet Resources for Special Children
JCAHO -Joint Commission on Accreditation for Healthcare Organizations - Speak Up Brochure and Poster
Kids as Self-Advocates (KASA) is a national organization of young people with special needs, supported by Family Voices. KASA supports people with disabilities by encouraging them to speak for themselves and by helping them find the resources to do this well. Their web site at www.fvkasa.org contains poems, artwork, articles, and news that are full of inspiration and information by and for young people with disabilities. There is also a listserv that sends out news and information. For more information, visit the site or call 773-465-3200.
Kaiser Family Foundation is a wonderful source of information related to Medicaid and many other topics on a wide variety of issues including demographics and the economy, managed care, health insurance coverage and the uninsured, women's health, HIV/AIDS and State Health Facts Online.
Learning Disabilities Association of America
Learning Disabilities Association of Washington - Information about learning disabilities and services.
Muscular Dystrophy Association - MDA
National Alliance for Better Communities (A Project of the Tu Luong Foundation) - Grant Information
National Alliance for the Mentally Ill
National Association for Down Syndrome
National Attention Deficit Disorder Association (NADDA) Information, resources, articles, services, support groups and more for individuals with attention deficit disorder.
National Center for Learning Disabilities (NCLD)
National Council on Independent Living & (Washington Resources)
National Collaborative on Workforce and Disability for Youth (NCWD)
National Down Syndrome Congress
National Information Center for Children and Youth with Disabilities (NICHCY)
The New Freedom Initiative's Online Resource for Americans with Disabilities:
NOW Legal Defense Education Fund, and Welfare Law Center's new advocacy effort, The Child Care Law Center, to promote access to quality, affordable child care for low-income families has a new website: http://www.childcareadvocate.org
Opening Doors (for Housing in rural areas)
Prader-Willi Syndrome Association
Projects of National Significance - PNS
Rebuilding Together- is a national volunteer home rehabilitation organization
Research and Training Center on Community Living
SIMPLIFIED SIGN SYSTEM for hearing, but nonspeaking, persons and their caregivers
S.N.A.P. Special Needs Advocate for Parents - (Financial Planning)
Sotos Syndrome Support Association
Special Need Family website is to foster an online community of families with special needs where we can meet other families and share our stories, questions, concerns, and ideas.
Special Needs Project - Online catalog of books about disabilities
Spina Bifida Association of America
Summer Camps & Programs 2004 (for children with Special Health Care Needs) - Children's Hospital 2004 resource book
Talk Autism - is an integrated group of communication technologies managed by experienced advocates. Our mission is to assist the autism community by being the one place to find many resources, and to assist in connecting people to other expert sites.
TASH - The Association for Persons with Severe Handicaps
The Technical Assistance Collobarative's (TAC) new publication Section 8 Made Simple is available to download in PDF format on TAC's website (http://www.tacinc.org). Click on Housing.
Traumatic Brain Injury - Washington Protection and Advocacy System (WPAS) works on legislative, legal and other advocacy issues important to people with Traumatic Brain Injuries (TBI). Call 1-800-562-2702.
Washington Yellow Pages for Kids with Disabilities
Wherify Wireless Location Service - GPS Locator for Kids/Adults
Travel and Entertainment Resources
Ideal Lives: Special Needs Practical Support - Travel and Vacation Links
Life Jackets-Adapted PFD-A International (safe and reliable design for people with reduced mobility)
Skilforall Foundation: Recreational Programs for People with Disabilities
Summer Ski For All – fun outdoors with accommodations
Volunteers of America (camping for adults with developmental disabilities)
Water Sports (Adapted for People with Disabilities)
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Presenting Community Connections, an on-line resource for children and adults with developmental disabilities living in King County. Find information about:
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. . .and MORE!
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Community
Connections is a service of The
Arc of King County For more information, call (206) 364-1613 ext. 141 E-mail: connections@arcofkingcounty.org |
The Institute on Community Integration The Research and Training Center on Community Living
Questions to ask Providers when Making Decisions About Residential Supports
for Family Members With Disabilities
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Revised 02/06/06
