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Links to Related Sites

(Last updated on 8/13/09)
 

Below are links to related disability sites hosted by non-profit or governmental organizations that offer free services and/or information based on values of integration and community living for individuals with disabilities.  Their inclusion on this page does not indicate an endorsement by The Arc of Washington State.

Click on Subject to go to the Bookmarked Area on this page or scroll through the list below.

Find links alphabetically by name: 
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Find links by subject:  
Advocacy, Education, Employment,  Federal,  Health, Information, State, Support, Transportation

A

Abuse Reporting Information for Vulnerable Adults
Agency Council on Coordinated Transportation
is a Council of State agencies, transportation providers, consumer advocates, and legislators with the mission to promote the coordination of special needs transportation.  Note: This is not a direct service.
American Association of People with Disabilities (AAPD) 
American Association on Intellectual and Developmental Disabilities (AAIDD)
American Association of University Centers on Disabilities (AUCD)
The Arc Link
The Arc of Clark County
The Arc of Cowlitz Valley

The Arc of Grays Harbor County
The Arc of King County

The Arc of Kitsap & Jefferson Counties
The Arc of Snohomish County
The Arc of Spokane County

The Arc of Tri-Cities
The Arc of Whatcom County
The Arc of the United States
The Arc of the United States - Legislative & Media Information
The Arc of the United States - Publications
ASK-Advocates for Special Kids
(parents helping parents understand special education)
Asperger’s Syndrome Information & Support
Association for Children with Down Syndrome, Inc.

Attention Deficit Disorder Association (ADDA) Information, resources, articles, services, support groups and more for individuals with attention deficit disorder.

Autism Collaboration

Autism Outreach Project
Autism Research at the NICHD
Autism Society of America
Autism Society of Washington

- ASW's Statewide Map for trainings, family activities, &    support groups

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B

 

Batten Disease Support and Research Association (BDSRA)
Benefits Eligibility Screening Tool (BEST)
- learn what social security benefits you may be eligible for (also in Spanish Language)

Boyer Children's Clinic
Brain Injury Association of America

Brain Injury Association of Washington

Bullying Report: How are Washington State Schools Doing? This preliminary report, issued by the Washington State PTA and The Safe Schools Coalition, is a result of the passage of HB 1444 in 2002.  View these preliminary findings to see how our  schools are dealing with issues of harassment, intimidation and bullying. 

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C

CdLS Society - Cornelia de Lange Syndrome Foundation
Center for Children with Special Needs - CSHCN (A Program of Children's Hospital & Regional Medical Center)

Center on Human Development and Disability
(UW)

Centers for Medicare & Medicaid Services

Center for Change in Transition Services (Seattle University)
CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder
CHADD Northwest

Children's Alliance

Children's Hospital - Seattle
Columbia Legal Services
Counsel of Exceptional Children (CEC)

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D


Dental Care
- Referral Service: website designed to link persons with dental needs and physical, mental, medical, or other disabilities to dental professionals.  
Washington State Developmental Disabilities Council    (DDC)

(DOE) OSERS - Department of Education, Office of Special Education and Rehabilitative Services.
DOL - Department of Labor

Help with Disability Claims - this website provides individuals access to retaining financial support for SSDI and SSI
Disability Government Information

Disability History Museum/Library & Education (Teacher Resources Course Packets)
Disability Resources Monthly
(DRM) Guide to Disability Resources on the Internet

Disability Rights Washington (formerly Washington Protection and Advocacy System)

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E

Early Infant & Childhood Conference
EFM Connections
- provides information for military families with special needs.

Emergency Evacuation Preparedness:  Taking Responsibility for Your Safety (PDF File)- Center for Disability Issues and the Health Professions
Epilepsy Foundation

Epilepsy Support Groups and Organizations

Estate Planning
(Publication by NICHCY - pdf file)

Exceptional Parent

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F

Families and Advocates Partnership for Education (FAPE)
Families Together

Families USA
- Information on Medicaid and managed care.
Family Village
- estate planning and special needs trusts
Family Village Project
has an internet guide with links to language translation sites. 
Family Voices:   Family and Friends Speaking on Behalf of Children with Special Health Care Needs.

Washington State Fathers Network

FEAT
: Families for Early Autism Treatment
FEAT of Washington:
Families for Effective Treatment of Autism.
Fetal Alcohol Syndrome Family Resource Institute

The First Signs

Fragile X Foundation
(National)

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G


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H


Healthcare Coach - by National Health Law Program
Healthfinder Espanol - new from HHS
Health Insurance Consumer Hotline - 1-800-562-6900 (WA State)

Help for Working Families - DSHS Eligibility A-Z Manual - Find what benefits are available to you.
HHS - U.S. Department of Health and Human Services
HUD - Housing and Urban Development

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I

IDEA 2004
Infant Toddler Early Intervention Program (ITEIP)

Informing Families, Building Trust
The Institute on Community Integration
-
University of Minnesota Center for Excellence in Developmental Disabilities
 

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J

JCAHO -Joint Commission on Accreditation for Healthcare Organizations
JLARC Reports

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K

KidsHealth - Information about healthcare for parents, kids and teens including basic information on several chronic childhood illnesses and diseases.
Kids Quest on Disabilities & Health
- from Centers for Disease Control & Prevention

Kids as Self-Advocates (KASA) is a national organization of young people with special needs, supported by Family Voices.

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L

Learning Disabilities Association of America
Learning Disabilities Association of Washington
- Information about learning disabilities and services.
LD Online

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M

March of Dimes
Muscular Dystrophy Association
- MDA

 

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N

National Academy of Sciences
National Alliance for the Mentally Ill (NAMI)
National Association for Down Syndrome

National Center on Educational Outcomes
(NCEO)
National Center on Educational Outcomes
(NCEO) -  Graduation Requirements.

National Center for Learning Disabilities
(NCLD)

National Center on Secondary Education and Transition

National Center on Severe and Sensory Disabilities - Formerly National Center on Low-Incidence Disabilities
National Center on Workforce and Disability/Adult
(One Stop Career Center)
National Collaborative on Workforce and Disability for Youth (NCWD)
National Council on Independent Living (Washington Resources)

National Down Syndrome Congress

National Early Intervention Longitudinal Study
(NEILS)
National Housing Trust

National Dissemination Center for Children with Disabilities (NICHCY) - Spanish Language Resources
National Institute of Child Health & Human Development
(NICHD)
National Institutes of Mental Health
(NIMH)
National Institute for Urban School Improvement

National Organization for Rare Disorders, Inc
.
(NORD)

National Disability Rights Network

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O

Office of Disability Employment Policy (ODEP) at the Department of Labor
Office of the Superintendent of Public Instruction
(OSPI)

Office for Victims of Crime

Opening Doors
(for Housing in rural areas)
- free online newsletter

Outdoors for All Foundation - Formerly Ski For All

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P

PACER CENTER - Parent Advocacy Coalition for Educational Rights.
Parent to Parent Support Programs of Washington State

P2PUSA

PAVE
People First of Washington - We are people first, our disabilities are secondary.

Pierce County Coalition for Developmental Disabilities
Prader-Willi Syndrome Association

Projects of National Significance (PNS), The Administration on Developmental Disabilities

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Q

QuickLinks is an email resource for health professions from Seattle Children's Hospital.  You can subscribe online or call: Abby Saxon 206.527.5707 ext. 5319

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R

Rebuilding Together-is a national volunteer home rehabilitation organization

Refugee Health (Office of Global Health Affairs)

The Research and Training Center on Community Living
Rett Syndrome
- International Rett Syndrome Foundation

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S

Self-Advocates Becoming Empowered (SABE)
Self Advocates in Leadership (SAIL) A statewide coalition on developmental disabilities focused on shaping public policies in Washington State.
Self Directed Support Corporations (SDSC):  A Self Determination Model Inclusion Research Institute:  Contact Jackie Golden for additional information.  Click on link to be directed to Jackie's e-mail.

Sibling Support Project
Social Security Administration:  Benefits for Children with Disabilities.

Social Security Online Disability Programs

Social Security Online Ticket to Work

Sotos Syndrome Support Association

Special Child
Special Olympics
Spina Bifida Association of America

Spokane County Parent Coalition

Surgeon General

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T

Talk Autism - An integrated group of communication technologies managed by experienced advocates.  Our mission is to assist the autism community by being the one place to find many resources, and to assist in connecting people to other expert sites.
TASH
- Equity, opportunity and inclusion for people with disabilities
The Technical Assistance Collobarative's
(TAC) Non-profit organization that works to achieve positive outcomes on behalf of people with disabilities and other spectial needs
Through the Looking Glass - National Resource Center for Parents with Disabilities, is a community based nonprofit organization.
Ticket to Work

Transition to Adult Life: A Shared Responsibility
- Vocational Rehabilitation Services Policy to Practice Guidebook (in .pdf format)

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U

United Cerebral Palsy (UCP)
United States House of Representatives Home Page

United States Senate Home Page

University of Washington Department of Rehabilitation Medicine

U.S. Office of Personnel Management
(Information on Federal Employment for People with Disabilities)

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V

VCFS/DiGeorge Family Support Network
Volunteers of America
(camping for adults with developmental disabilities)

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W

The Washington Assistive Technology Foundation (WATF)
Washington Education Association
(WEA)

Washington Human Rights Commission
(HRC)

Washington State Department of Early Learning (DEL)
Washington State Division of Developmental Disabilities
(DDD)

Washington State Division of Vocational Rehabilitation
(DVR)

Washington State Legislative Evaluation and Accountability Program (LEAP) Committee
Washington State Legislature

Washington State Medical Home Leadership Network
(MHLN)
promotes medical home partnerships.
Washington State Parent Coalitions

Washington State Special Education Coalition
(WSSEC)

Washington State Special Education Training for All
(WSSETA)

Welfare Reform and SSI Childhood Disability
(pdf) - Disability evaluation under social security (also known as the "Blue Book")
Whitehouse.gov 

Williams Syndrome Association

WithinReach (Formerly Healthy Mothers, Healthy Babies)

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X

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Y

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Z

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Advocacy

Abuse Reporting Information for Vulnerable Adults
Columbia Legal Services

Disability Rights Washington (formerly Washington State Protection and Advocacy System)

Kids as Self-Advocates (KASA) - supported by Family Voices, KASA is a national organization of young people with special needs.
PACER CENTER - Parent Advocacy Coalition for Educational Rights.
People First of Washington
Pierce County Coalition for Developmental Disabilities

Self-Advocates Becoming Empowered (SABE)

Self Advocates in Leadership (SAIL), a statewide self-advocacy coalition focused on shaping public policies.
Spokane County Parent Coalition
The Arc Link
The Arc of Clark County
The Arc of Cowlitz Valley

The Arc of Grays Harbor
The Arc of King County

The Arc of Kitsap & Jefferson Counties
The Arc of Snohomish County
The Arc of Spokane County

The Arc of Tri-Cities
The Arc of Whatcom County
The Arc of the United States
The Arc of the United States - Legislative & Media Information
The Arc of the United States - Publications Desk
National Disability Rights Network

Washington State Parent Coalitions

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Education

ASK-Advocates for Special Kids (parents helping parents understand special education)
Bullying Report:
How are Washington State Schools Doing? This preliminary report, issued by the Washington State PTA and The Safe Schools Coalition, is a result of the passage of HB 1444 in 2002.  View these preliminary findings to see how our  schools are dealing with issues of harassment, intimidation and bullying. 
Center for Change in Transition Services (Seattle University)
Disability History Museum/Library & Education (Teacher Resources Course Packets)
Families and Advocates Partnership for Education (FAPE)
National Academy of Sciences

National Center on Educational Outcomes (NCEO)
National Center on Secondary Education and Transition
National Institute for Urban School Improvement
Office of the Superintendent of Public Instruction (OSPI)
PACER CENTER - Parent Advocacy Coalition for Educational Rights.

PAVE
Washington Education Association (WEA)
Washington State Special Education Coalition (WSSEC)
Washington State Special Education Training for All
(WSSETA)

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Employment


National Center on Workforce and Disability/Adult (One Stop Career Center)
Office of Disability Employment Policy (ODEP) at the Department of Labor (grants for employment)

Social Security Online Ticket to Work
U.S. Office of Personnel Management (Information on Federal Employment for People with Disabilities)

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Federal


Benefits Eligibility Screening Tool (BEST) - learn what social security benefits you may be eligible (also in Spanish Language)
Centers for Medicare & Medicaid Services
(DOE) OSERS - Department of Education, Office of Special Education and Rehabilitative Services
DOL - Department of Labor
Disability Government Information
HHS - U.S. Department of Health and Human Services

HUD - Housing and Urban Development
National Housing Trust Fund
Social Security Administration:  Benefits for Children with Disabilities.

Social Security Online Disability Programs
United States House of Representatives Home Page
United States Senate Home Page

Welfare Reform and SSI Childhood Disability (pdf) - Disability evaluation under social security
Whitehouse.gov
 

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Health


Center for Children with Special Needs
- Linkages newsletter
Center for Children with Special Health Care Needs (CSHCN) 
Dental Care - Website designed to link individuals with disabilities to dental professionals. 
Emergency Evacuation Preparedness:  Taking Responsibility for Your Safety (PDF File)- Center for Disability Issues and the Health Professions

The First Signs
Healthcare Coach - by National Health Law Program

Health Insurance Consumer Hotline - 1-800-562-6900
Healthfinder Espanol - new from HHS 
Healthy Mothers, Healthy Babies Coalition of Washington State
  - ASK (Answers for Special Kids) 1-800-322-2588.
KidsHealth - Information about healthcare for parents, kids and teens including basic information on several chronic childhood illnesses and diseases.

Kids Quest on Disabilities & Health
National Institute of Child Health & Human Development (NICHD)
National Institutes of Mental Health

National Organization for Rare Disorders, Inc
.

Project MED (Medical Education for Consumers) was created with funding from the U.S. Administration on Developmental Disabilities. The goal of project MED is to provide patients with information, in a manner that they can understand, about the medications that they are taking.
Refugee Health (Office of Global Health Affairs)
Surgeon General
The Washington Assistive Technology Foundation (WATF)
Washington State Medical Home Leadership Network (MHLN) promotes medical home partnerships.

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State

Abuse Reporting Information for Vulnerable Adults

DSHS Home Page 
Help for Working Families - DSHS Eligibility A-Z Manual - Find what benefits are available to you.
Infant Toddler Early Intervention Program (ITEIP)

Informing Families, Building Trust
JLARC Reports
Washington State Developmental Disabilities Council (DDC)
Washington State Division of Developmental Disabilities
(DDD)

Washington State Division of Vocational Rehabilitation
(DVR)

Washington Human Rights Commission (HRC)

Washington State Department of Early Learning (DEL)
Washington State Legislative Evaluation and Accountability Program (LEAP) Committee
Washington State Legislature

 

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Support

Exceptional Parent
Families Together
Parent to Parent Support Programs of Washington State
The Sibling Support Project

Thurston County Parent to Parent

VCFS/DiGeorge Family Support Network
Washington State Fathers Network

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Transportation

Agency Council on Coordinated Transportation is a Council of State agencies, transportation providers, consumer advocates, and legislators with the mission to promote the coordination of special needs transportation.  Note: This is not a direct service.

Information and Other Resources


American Association of People with Disabilities - (AAPD) 
American Association on Intellectual and Developmental Disabilities (AAIDD)
American Association of University Centers on Disabilities (AUCD)
The Arc of the United States - Publications Desk
Asperger’s Syndrome Information
Association for Children with Down Syndrome, Inc.

Attention Deficit Disorder Association (ADDA) Information, resources, articles, services, support groups and more for individuals with attention deficit disorder.

Autism Collaboration
Autism Research at the National Institute of Child Health & Human Development (NICHD)
Autism Help Flash Cards  -
CD-ROM with thousands of images to teach children with Autism. 

Autism Society of America
Autism Society of Washington
Batten Disease Support and Research Association
Brain Injury Association of America
Brain Injury Association of Washington

CdLS Society - Cornelia de Lange Syndrome Foundation
Center on Human Development and Disability (UW)
The Cerebral Palsy Critical Elements of Care - CSHCN (pdf document)
The Cerebral Palsy Magazine

CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder
CHADD Northwest

Children's Alliance

Columbia Legal Services
Counsel of Exceptional Children (CEC)

Easter Seals Society

Easter Seals Society of Washington

EFM Connections
- provides information for military families with special needs.

Epilepsy Foundation
Epilepsy Support Groups and Organizations

ERICEC Clearing House on Disabilities and Gifted Education 

Families USA
- Information on Medicaid and managed care
Family Village
- estate planning & special needs trusts
Family Village Project
has an internet guide with links to language translation sites. 
Family Voices:   Family and Friends Speaking on Behalf of Children with Special Health Care Needs.

FEAT
- Families for Early Autism Treatment
FEAT of Washington:
Families for Effective Treatment of Autism.
Fetal Alcohol Syndrome Family Resource Institute

Fragile X Foundation
Informing Families, Building Trust

The Institute on Community Integration - University of Minnesota Center for Excellence in Developmental Disabilities
JCAHO -Joint Commission on Accreditation for Healthcare Organizations

Learning Disabilities Association of America
Learning Disabilities Association of Washington
- Information about learning disabilities and services.

LD Online
March of Dimes
Muscular Dystrophy Association
- MDA

National Alliance for the Mentally Ill
National Association for Down Syndrome
National Center for Learning Disabilities (NCLD)

National Center on Severe and Sensory Disabilities - Formerly National Center on Low-Incidence Disabilities
National Down Syndrome Congress
National Dissemination Center for Children with Disabilities (NICHCY)

National Early Intervention Longitudinal Study (NEILS)
Office for Victims of Crime
Opening Doors
(for Housing in rural areas)
- free online newsletter
Prader-Willi Syndrome Association
Projects of National Significance
 (PNS), the Administration on Developmental Disabilities
Rebuilding Together-is a national volunteer home rehabilitation organization

The Research and Training Center on Community Living
Rett Syndrome - International Rett Syndrome Foundation
Special Needs Project
- Online catalog of books about disabilities.

Special Olympics

Spina Bifida Association of America
Talk Autism - is an integrated group of communication technologies managed by experienced advocates.
TASH
- The Association for Persons with Severe Handicaps
Through the Looking Glass - National Resource Center for Parents with Disabilities, is a community based nonprofit organization.

Transition to Adult Life: A Shared Responsibility - Vocational Rehabilitation Services Policy to Practice Guidebook
United Cerebral Palsy (UCP)

University of Washington/Department of Rehabilitation Medicine
Washington Yellow Pages for Kids with Disabilities
Williams Syndrome Office

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